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Surfing for Answers

Our medical librarian selects best online cancer resources so you don't have to

inside of a library
Virtual libraries now exist at your fingertips -- but not all of them are equally reliable or credible.

If you think you can trust the results of your latest Google search on cancer, click again. And again. And again.

It's important to use trusted resources when it comes to your health or that of a loved one, but verifying a cancer website's credentials is a multistep -- and often time-consuming -- process.

"You want to make sure that the information you find on the Internet has the same level of credibility as your physician," says Ruti Volk, M.S.I., A.H.I.P., the University of Michigan Health System's Patient Education librarian and former manager of the U-M Comprehensive Cancer Center's Patient Education Resource Center. "It's important to check a website's credentials, because if you base a decision on bad, inaccurate or outdated information, you can really cause yourself a lot of harm," she says.

Volk, an award-winning medical librarian, shares her choices for the best online cancer resources so cancer patients, their family and friends can focus on what's important: time together.

American Cancer Society

Who runs it: The American Cancer Society (ACS) is a nationwide, community-based organization that supports patients, survivors and caregivers throughout their cancer experience; funds cancer research; and works with lawmakers to promote beneficial policies, laws and regulations.

What you'll find: This website covers it all, from detailed summaries for specific types of cancer to extensive information on staying healthy and finding support. Browse the website to learn more about developing healthy habits, making cancer-related decisions and coping with treatment side effects. ACS packs in a lot of information, but section overviews make it easier to locate what you need. The organization also offers the Clinical Trials Matching Service, a free program to help cancer patients find clinical trials that may be right for them.

Visit: cancer.org.

American Society of Clinical Oncology's Cancer.net

Who runs it: Cancer.net is the patient information website of the American Society of Clinical Oncology, a nonprofit organization of nearly 30,000 oncology practitioners that aims to improve cancer care and prevention.

What you'll find: All information is oncologist-approved, providing visitors with the latest research news, treatment guidelines and online discussions with oncologists. This website offers free audio podcasts and videos on various cancer-related topics, as well as in-depth guides on coping with cancer and survivorship. Cancer.net dedicates an entire section to those who have recently been diagnosed with cancer to help guide them through the process. The site suggests questions patients should ask providers and explains the oncology team's role in cancer care.

Visit: cancer.net.

The Cancer Journey

Who runs it: The Cancer Journey was created through the expertise and resources of the Oncology Nursing Society (ONS), the world's largest professional oncology association. ONS includes more than 37,000 registered nurses and other health care providers dedicated to excellence in patient care, education, research and administration.

What you'll find: This website focuses on managing side effects and symptoms during and after cancer treatment. The Cancer Journey summarizes research on ways to better manage cancer-related symptoms. All information is reviewed by ONS experts. For those who need help making cancer treatment decisions, The Cancer Journey offers a free tool called the Cancer Profiler, which uses a questionnaire to match a patient's diagnosis, diagnostic results and disease stage with relevant treatment options. Another unique feature is "Traveling Companions," a blog written by oncology nurses and caregiver experts to provide support and advice to patients and their caregivers.

Visit: thecancerjourney.org.

National Cancer Institute

Who runs it: The National Cancer Institute (NCI) is part of the National Institutes of Health, one of 11 agencies in the U.S. Department of Health and Human Services.

What you'll find: This website features the Physician Data Query, NCI's comprehensive cancer database. It contains peer-reviewed, evidence-based summaries on treatment of adult and childhood cancer types and supportive care topics. Oncology specialists update these statements monthly. The site also has a database of cancer clinical trials, which can be searched based on cancer type or condition, stage, trial status and more. A comprehensive cancer term dictionary helps translate confusing medical jargon into everyday language.">

Visit: cancer.gov.

National Comprehensive Cancer Network

Who runs it: The National Comprehensive Cancer Network (NCCN) is a nonprofit alliance of the world's leading cancer centers -- including the U-M Comprehensive Cancer Center -- dedicated to improving the quality and effectiveness of care provided to patients with cancer.

What you'll find: Physicians worldwide use the NCCN Clinical Practice Guidelines in Oncology -- the most comprehensive and most frequently updated clinical practice guidelines -- to make sure their treatment decisions are well informed. The NCCN currently offers guidelines for patients with breast cancer, non-small cell lung cancer, melanoma, multiple myeloma, prostate cancer and ovarian cancer (with more being added).

Visit: www.nccn.org/patients

CancerCare

Who runs it: CancerCare is a national nonprofit organization.

What you'll find: This organization provides free, professional support services for anyone affected by cancer. Services include free counseling sessions with an oncology social worker and various opportunities to connect with support groups or participate in free educational workshops about cancer-related issues. CancerCare also offers specialized services for parents; women; young adults; and members of the lesbian, gay, bisexual, and transgender.

Visit: cancercare.org.

Cancer Support Community

Who runs it: Popular cancer support programs Gilda's Club and the Wellness Community merged to create The Cancer Support Community, an international nonprofit organization that is the largest employer of psychosocial oncology mental health professionals in the United States.

What you'll find: This organization offers support groups, lectures, workshops and social events for people affected by cancer, including patients, family members and friends. The website allows users to get support and participate in programs online through a free registration process. The site covers a wide range of topics, from being newly diagnosed to survivorship and caring for cancer patients. A video journal option allows you to share your story with others.

Visit: cancersupportannarbor.org/.

MedlinePlus

Who runs it: MedlinePlus is the National Institutes of Health's website for patients, their families and friends. The U.S. National Library of Medicine, which is a part of the National Institutes of Health and also is the world's largest medical library, created and maintains the website.

What you'll find: MedlinePlus is not just a health directory website; it's considered one of the premier websites for all health information. While the directory isn't cancer-centric (it contains information on more than 800 health-related topics), it links to many resources that are relevant to cancer patients. A team of medical librarians select authoritative, patient-friendly web-based health resources. Up-to-date, systematically reviewed information on the various types of cancers and cancer-related topics can be found under the site's "Health Topics" tab. Click a topic to reveal links to basic overviews, multimedia tools, research and more. For those who may be experiencing information overload, MedlinePlus offers a "Start Here" section, which pulls two to three links that directs you to the "must know" information.

Visit: Medlineplus.gov.

Looking for answers on the go? MedlinePlus also offers a mobile version at http://m.medlineplus.gov/.

Shop Well With You

Who runs it: Shop Well with You is a national nonprofit organization. Emily Spivack, the organization's founder and a Brown University graduate, launched the website after watching her mother struggle to find clothes that were both comfortable and stylish during multiple fights against cancer.

What you'll find: This website aims to be a body-image resource for women with cancer, offering tips on how women can use clothing and accessories to maintain a positive body image during and after treatment. The site offers patients customized clothing tips based on their cancer-related treatments and treatment side effects. Visit the site's directory of cancer-specific products -which includes swimsuits and head coverings - to search for various garments, brands or styles. The directory helps users locate websites that offer the selected product, giving a brief overview. The site's hidden gem: A fabric guide helps patients determine which fabrics may be most comfortable for their sensitive skin.

Visit: www.shopwellwithyou.org.

CancerandCareers.org

Who runs it: Cancers and Careers is a program of the Cosmetic Executive Women Foundation. The foundation is the charitable arm of the New York-based Cosmetic Executive Women Inc., a nonprofit trade organization with 4,000 executives in the beauty, cosmetics, fragrance and related industries.

What you'll find: The name says it all. This website provides in-depth information in English or Spanish on juggling a career and a cancer diagnosis. Although it caters to working women with cancer, the site also offers information for employers, co-workers and caregivers. The website hosts various educational events, such as free teleconferences with legal and career experts, and provides tips to help those returning to work or job hunting after cancer treatment. A can't-miss feature is the site's discussion board. Professional career coaches offer free advice about various topics, including how to explain your time off work to potential employers. Every post receives a response, but be sure to skim the board to avoid repeat questions.

Visit: www.cancerandcareers.org.

Updated August, 2015, Amy Schroer, M.I.L.S., Librarian, Patient Education Resource Center.

Read Thrive, Spring 2011

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Michigan Medicine Resources:

    Michigan Health Blog
    provides health news and wellness tips and helps readers managing health conditions, caring for loved ones and simply seeking to live well find information and support.

    Michigan Health Lab:
    provides news on cutting-edge research as well as featuring premier patient stories.

    Living with Cancer
    the online archive of news, tips, patient stories and information on life with cancer -- whether you're a caregiver or survivor.

    Information Guides
    a list of cancer topic-specific resources reviewed and approved by physicians and other healthcare professionals at the U-M Comprehensive Cancer Center.

 

Thrive Issue: 
Spring, 2011