skip to main content

Sarcoma Survivorship Program

Addressing the long term health care needs of sarcoma cancer survivors no longer in active treatment

Your sarcoma treatment is over, but your journey is just beginning.

At the University of Michigan Adult Sarcoma Survivorship Program, we are dedicated to helping sarcoma survivors live their lives to the fullest after treatment. Survivorship is a priority in cancer care.

Regardless of where a patient was treated, our Program offers comprehensive follow-up care in our sarcoma disease-specific adult survivorship clinic. The clinic is open to sarcoma survivors age 18 years and older who have been off therapy for at least two years and to patients who are transitioning from pediatric to adult medical care.

Our goals are to:

  • provide excellent clinical care.
  • Optimize survivor’s overall health and wellness
  • Prevent or reduce the impacts of long-term and late physical effects of cancer and its treatment
  • Surveillance for sarcoma recurrence and secondary cancer
  • Assist the transition from pediatric to adult medicine
  • Foster research to advance survivorship care

You will receive an individualized survivorship care plan, which includes a summary of the treatment you completed and a written plan containing follow up care and screening recommendations.

Survivor patients may self-refer to the Sarcoma Survivorship Clinic or physicians may refer their patients to the clinic by calling 734-764-2909.

Download and print the Sarcoma Survivorship Program Brochure.

Patient Story: Nicole

Nicole Ver Kuilen

For Nicole Ver Kuilen, cancer was largely in the past. The 34 year-old from Minnesota lost her leg at age 10 to a rare bone cancer called osteosarcoma. A runner and athlete, she had grown accustomed to living with a prosthetic leg, but was surprised to learn of her risk for other health problems as a result of her treatment all those years ago.

As a college student at the University of Michigan in 2011, she received care for her prosthetic leg at Michigan Medicine. Her physician referred her to the Sarcoma Survivorship Program at The University of Michigan Rogel Cancer Center to begin the important step of monitoring her health into adulthood.

“I was very grateful as I had no idea that I was at increased risk for heart disease due to my cancer treatment. I am now on Lipitor to reduce my high cholesterol as a preventative measure,” Ver Kuilen says.

Read Nicole’s full story

updated: 05.2018